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Endometriosis is more than just "bad cramps" — it's a chronic, often debilitating condition that affects 1 in 10 women and girls globally. Yet, despite how common it is, many struggle for years before getting a proper diagnosis. If you're battling intense period pain, exhaustion that won’t let up, painful sex, or digestive issues that seem tied to your cycle, we see you. The road to diagnosis can be frustrating, but knowing what to expect can make it feel a little less overwhelming — and help you advocate for the care and relief you deserve.
Recognizing the symptoms of endometriosis
Endometriosis occurs when tissue similar (but not identical) to the lining of the uterus grows outside the uterus. This can cause inflammation, scarring, and pain that goes far beyond what’s considered normal. Because symptoms vary widely, many people go years without answers. Some of the most common signs include:
- Severe menstrual cramps that interfere with daily life
- Chronic pelvic pain, even outside of your period
- Pain during or after sex
- Digestive issues, such as bloating, constipation, or diarrhea
- Fatigue that makes it hared to function
- Difficulty getting pregnant
Too often, these symptoms are brushed off as “just part of being a woman.” But if your pain is persistent or getting worse, you don’t have to just live with it. If it’s interfering with your daily life, it’s time to seek medical advice.
What to expect diagnosing endometriosis
Getting diagnosed with endo can feel like an uphill battle. Unlike some conditions that can be confirmed with a simple blood test, endometriosis often requires multiple steps — and sometimes, persistence. But knowing what to expect can help you feel more in control.
Medical history and symptom tracking
Your doctor will likely start by asking about your symptoms and medical history. Keeping a symptom journal — tracking pain levels, patterns, and related issues — can be a game-changer. It helps paint a clearer picture and guide next steps.
Pelvic exam
A provider may perform a pelvic exam to check for abnormalities like cysts or tenderness. But since endometriosis lesions are often small and hidden, a normal exam doesn’t mean you don’t have the condition.
Imaging tests
An ultrasound or MRI may help detect cysts (like ovarian endometriomas), but imaging can’t always confirm endometriosis. Many cases go undetected with these tests alone.
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One of the most exciting developments in endometriosis detection is the MyReceptiva test, which looks for the presence of BCL6, a marker highly associated with endometriosis and supported by 8 years of clinical use in the infertility space (but is now available to everyone!).
Laparoscopy: The gold standard
The most definitive way to diagnose endometriosis is through laparoscopy, a minimally invasive surgery where a small camera is inserted into the abdomen to look for lesions. If endo is found, a biopsy may be taken for confirmation. Surgery can feel intimidating, but for many, it’s the only way to get clear answers.
MyReceptiva™ test: A less invasive option
Thankfully, there are now less invasive options, like the MyReceptiva test, which looks for a protein (BCL6) linked to endometriosis. It involves:
- An endometrial biopsy (a quick office procedure)
- Lab analysis to check for elevated BCL6 levels
- Results: A positive test suggests endometriosis is likely, while a negative result makes it less likely
This test can help you and your doctor make more informed decisions about your next steps. Learn more here, and use code RESCRIPTED to get $85 off!
Advocating for yourself with endometriosis
Because endometriosis symptoms can mimic other conditions, and some doctors still downplay menstrual pain, self-advocacy is crucial. If a provider dismisses your concerns or tells you pain is “normal,” don’t hesitate to get a second opinion.
Here are some ways to advocate for yourself:
- Come prepared with a list of symptoms and questions
- Request imaging or diagnostic tests if you suspect endometriosis
- Ask for a referral to a specialist if needed
- Bring a support person to appointments for confidence and reassurance
Common myths and misconceptions
Misinformation about endometriosis makes the diagnosis process even more defeating. Here are a few myths you might hear — and the truth behind them:
🚫 “Pregnancy will cure endometriosis.”
✔️ Some people experience symptom relief during pregnancy, but it’s not a cure — and symptoms often return postpartum.
🚫 “Teens can’t have endometriosis.”
✔️ Endo can develop as early as the first period, but many young people are told they’re “too young” to have it.
🚫 “Hysterectomy is the only solution.”
✔️ While surgery is an option, it’s not the only one. And in some cases, endo can persist even after a hysterectomy.
🚫 “Painful periods are normal.”
✔️ Mild discomfort is common, but severe pain that disrupts daily life is not normal — and shouldn’t be ignored.
Moving forward after a diagnosis
When you do finally have an answer to what’s been causing your pain, it can bring both relief and frustration. It also raises the question: Now what?
Managing endo often means exploring different treatments, including:
- Hormonal therapy (like birth control or GnRH agonists)
- Pain management (NSAIDs, acupuncture, dietary changes)
- Pelvic physical therapy
- Surgery
Because endo can take a huge emotional toll, support is everything. Whether it’s through friends, therapy, or online communities, finding people who understand can make a world of difference.
You don’t have to suffer in silence or feel dismissed. By educating yourself, speaking up for your care, and building a strong support system, you can take control of your health and navigate an endometriosis diagnosis with confidence. You’ve got this!
Kristyn Hodgdon is the Co-Founder and Chief Creative Officer at Rescripted and host of From First Period To Last Period.